Well, we made it 1 year seizure free since the last one in November of 2016. Only 1 seizure in about 4 1/2 years!! We are so grateful for that. I do admit that fear of one sneaking in while his is sleeping is huge. We still use his bed monitor and he has the embrace watch. The watch he wears during the day to school and if he goes where we will not be present. The last seizure, as well as the first seizures he ever had were fever related. With the flu bad this year I worried about him getting a fever and it spiking before we became aware. The seizures are caused by rapid increase in the temperature, not how high it goes. His fever was only 100.7 when he had his first seizure. I found a device that he can wear to measure his temperature and alert at the first sign of a fever and spikes. It is placed under his arm and he hasn't complained about it being uncomfortable yet. He actually wore it to soccer practice and didn't even notice it. Fortunately, he hasn't caught anything so we haven't been able to test if it really works. We can report to anyone interested in a product like this what we experience. We really appreciate all our followers and supporters. There are so many families just beginning this journey or still struggling with it. We hope that with the walk we hold every year that we can provide assistance like we received in the beginning. Thank you from the bottom of our hearts!
Raise Awareness. Epilepsy Matters.